This year, Rare Diseases South Africa is redefining what it means to be rare. Because we all are! Your voice can help us raise much needed awareness for rareness.
We invite you to
SHARE YOUR RARE
What makes you rare? Is it your crazy ability to touch your chin with your tongue, do a cartwheel or solve maths problems quickly? Maybe you can solve a Rubik’s cube in a flash?
Rare traits aren’t limited. Every one of us has special qualities. What sets you apart could just be small acts of kindness, a bold step forward. Challenge others to test your amazing talent or rare trait. Or simply share your rare with the world and get others involved.
YOUR VOICE IS NEEDED
We are looking for individuals, ambassadors, influencers and corporate partners. Sign up now and receive the FREE RareAware social media pack with all the goodies you need make your socials pop. Learn more, join us!
#ShareYourRare and be a part of #RarenessAwareness
Join us in the socials @Rare_Aware
We aim to take over the negative stories and share stories of miracles, rare feats, rare facts, rare places and rare people. There is rareness in all of us.
Without your voice and your support, Rare Diseases South Africa cannot advocate and provide care for those of us who are diagnosed with a rare disease or who provide care to the millions who remain undiagnosed. We need your participation.
Share your rare, post your stories, invite friends and family to join our campaign and empower people living with rare diseases.
Let your rareness shine!
While we have all struggled with wearing masks and fears of getting ill from COVID, rare disease patients have lived this way from birth. With low immunity and compromised health, every day is a challenge for them.
Using the power of social media, put your rareness out there and help Rare Diseases South Africa generate awareness for rareness.
RARE IS PRECIOUS
We spend a lot of time and money trying to preserve rareness. That’s why we are working hard to save or improve the lives of those 1 in 15 South Africans who will contract a rare disease at some point in their lives.
At Rare Diseases, we’re doing our best to support those 4.1 million South Africans – and an estimated 350 million people around the globe – who have been diagnosed with Rare Diseases.
Rare Diseases SA, making a difference to people’s everyday life, everyday!
RAISING THE Bar
NEW YEAR, NEW GOALS
Funds to be raised in the next 24 months:
To shift from REACHING 1 in 15 people living with rare diseases
To TREATING 1 in 15 people living with rare diseases