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#Rarenessawareness

YOU ARE REMARKABLE. YOU ARE ONE OF A KIND. YOU ARE RARE.

We don’t just need money. How can I help?

This year, Rare Diseases South Africa is redefining what it means to be rare. Because we all are!  Your voice can help us raise much needed awareness for rareness.

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We invite you to

SHARE YOUR RARE

What makes you rare? Is it your crazy ability to touch your chin with your tongue, do a cartwheel or solve maths problems quickly? Maybe you can solve a Rubik’s cube in a flash?

Rare traits aren’t limited. Every one of us has special qualities. What sets you apart could just be small acts of kindness, a bold step forward. Challenge others to test your amazing talent or rare trait. Or simply share your rare with the world and get others involved.

 
 

#RarenesSawareness

YOUR VOICE IS NEEDED

We are looking for individuals, ambassadors, schools, influencers, and corporate partners. Sign up now and receive the FREE RareAware social media pack with all the goodies you need make your socials pop.

Learn more, join us!

 #ShareYourRare and be a part of #RarenessAwareness 

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Show your support

GET YOUR GEAR

We aim to take over the negative stories and share stories of miracles, rare feats, rare facts, rare places and rare people. There is rareness in all of us. 

Rare cares

Without your voice and your support, Rare Diseases South Africa cannot advocate and provide care for the #1in15 who are diagnosed with a rare disease or those who provide care to the millions who remain undiagnosed.  We need your participation.

 

Share your rare, post your stories, invite friends and family to join our campaign and empower people living with rare diseases.

Let your rareness shine!

While we have all struggled with wearing masks and fears of getting ill from COVID, rare disease patients have lived this way from birth. With low immunity and compromised health, every day is a challenge for them.

 

Using the power of social media, put your rareness out there and help Rare Diseases South Africa generate awareness for rareness. 

ChANgInG Lives

RARE IS PRECIOUS

We spend a lot of time and money trying to preserve rareness. That’s why we are working hard to save or improve the lives of those 1 in 15 South Africans who will contract a rare disease at some point in their lives.

 

At Rare Diseases, we’re doing our best to support those 4.1 million South Africans – and an estimated 350 million people around the globe – who have been diagnosed with Rare Diseases.

let our stories inspire you

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Rare Diseases SA, making a difference to people’s everyday life, everyday!

JOIN US IN THE SOCIALS 

RARE _ AWARE

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RAISING THE Bar

NEW YEAR, NEW GOALS

Funds to be raised in the next 24 months:

R1 BILLION

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To shift from REACHING 1 in 15 people living with rare diseases

To TREATING 1 in 15 people living with rare diseases 

 With your voice, we believe we can.  
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