Welcome to Rare, let’s get started

how cool

IS YOUR SCHOOL?

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whats happening

IN THE PRESS

PRESS & MEDIA SIGNUP

Everything you need to know

LET’S TAKE ACTION

We are so excited to get #ShareYourRare going! With your support, you’ll enable Rare Diseases South Africa NPC to continue advocating for those impacted by rare diseases and provide care to the millions who remain undiagnosed. Share your rare, post your stories, invite friends, family and co-workers to join our campaign and help us to empower people living with rare diseases.

CAMPAIGN OVERVIEW

On 28 February we once again celebrate International Rare Disease Day. We want to flip the script and tell positive stories of miracles, rare feats, rare facts, rare places and rare people. In every story there is a silver lining.

In the weeks leading up to the day, and throughout 2022, we’ll be inviting South Africans to “share their rare” on social media and we need you to help us spread the word. Here is how…

FIRST GET INVOLVED

We are looking for media partners to get involved by sharing what is uniquely rare about your business, or running the campaign internally or partnering with Rare Diseases SA to support the work we do.  Sign up now and receive the FREE Media Kit with all the goodies you need make our campaign pop. Learn more, join us!

ROLL OUT

Step 1

Complete your details on the sign up form, get the Press and Media kit, and let those creative juices fly. 

 

Step 2

Publish our #ShareYourRare campaign and tell the world why our campaign is so amazing and why getting involved is so important.

Step 3

Stay in touch with us, so that together, we can continue to change the world.

DOn’t forget to:

Tell everyone

To get involved and join us  www.rareaware.africa

Sign up to receive your FREE Rare media assets

Tag us in

Facebook
@rarediseasesSA

Instagram
@rarediseasessa @rare_aware

Twitter
@RarediseasesSA

LinkedIn
@rare-diseases-south-africa

Our hashtags

#rarenessawareness

#shareyourrare #whatsyourrare #rareaware #rarediseasessa #rarecares #rarediseaseday #awareness4rareness #RDD2022

ANATOMY OF A POST

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Get ready to #ShareYourRare and be a part of #RarenessAwareness on 28 February 2022, World Rare Disease Day