Everything you need to know
LET’S TAKE ACTION
We are so excited to get #ShareYourRare going! With your support, you’ll enable Rare Diseases South Africa NPC to continue advocating for those impacted by rare diseases and provide care to the millions who remain undiagnosed. Share your rare, post your stories, invite friends, family and co-workers to join our campaign and help us to empower people living with rare diseases.
CAMPAIGN OVERVIEW
On 28 February we once again celebrate International Rare Disease Day. This year, throughout 2021, we want to flip the script and tell positive stories of miracles, rare feats, rare facts, rare places and rare people. In every story there is a silver lining.
In the weeks leading up to the day, and throughout 2021, we’ll be inviting South Africans to “share their rare” on social media and we need you to help us spread the word. Here is how…
ROLL OUT
Step 1
Ask your students to go home and find something Rare, or chat to their friends and families about their Rare qualities.
Step 2
Host a "Rare" day at school whereby students wear civvies, and purchase their Rare badges for R10 each
Step 3
Read our book, Harriet's Gift (which will be supplied to all schools free of charge) during story time at school, teaching children about adversity and appreciation of difference and uniqueness. Harriet's Gift can also be printed and handed out to pupils as a colouring book.
Step 4
Encourage the students to "Share their Rare" and engage on understanding Rareness Awareness.
DOn’t forget to:
Tag us in
Facebook
@rarediseasesSA
Instagram
@rarediseasessa @rare_aware
Twitter
@RarediseasesSA
LinkedIn
@rare-diseases-south-africa
Our hashtags
#rarenessawareness #whatsyourrare #rareaware #rarediseasessa #rarecares #rarediseaseday #shareyourrare #awareness4rareness #RDD2021